Hello most of you allready know my two boys have this and will have a very short life span... Well the There is a drug out that there is in the early stages and FDA has yet to approve the drug . The drug will stop it in its track but wont cure that . So im on here today asking for you guys to go to youtube watch this video hit like and pass it on to everyone you know we have sent letters and this video to the Fda and we are hoping that the lives of these people with this can live as long as we do...... Plz feel free to comment here and there NO personal attack against me on either if you do this on my youtube ill ban you from commented on any of my stuff there . i know i am hated by alot of you guys cause of pvp but this isnt about me its about the kids that have to suffer ... so please dont be stupid.. thank you.here is the link YouTube - muscle dystrophy cloquet